Associate Director, Patient Navigator

SUMMARY

Genetix Biotherapeutics' Market Access, Advocacy + Policy (MAAP) team is dedicated to helping patients access our innovative gene therapies. As a member of the Market Access Advocacy and Policy team (MAAP) you will be working alongside some of the most committed, creative, and experienced individuals in the cell and gene therapy industry to break new ground so that patients can access our FDA-approved gene therapies—patients who often have no therapeutic alternatives to battle progressive, debilitating, and life-shortening diseases. We are passionate about the science behind our gene therapies and the tremendous value we believe these one-time administered, potentially curative therapies bring to patients, their families, the healthcare system, and society overall.

 ABOUT US

As a member of the Patient Services team, you will have the opportunity to provide education, guidance and support to patients who are enrolled in the company’s patient support services program. In this role, you offer personalized assistance to each patient, and their caregivers, throughout the gene therapy treatment journey.

The Associate Director, Patient Navigator serves as a trusted partner to patients, caregivers, and Qualified Treatment Centers (QTCs), while also collaborating cross-functionally to optimize program operations. This role brings expertise, strategic oversight, and deep empathy to drive patient-centered care and operational excellence.

 KEY RESPONSIBILITIES

Patient & Caregiver Education

• Provide high-touch, education, support & resources to patients and caregivers regarding the gene therapy treatment process, including pre-treatment considerations, treatment day logistics, and post-treatment expectations.
• Educate the patient on their gene therapy coverage based on their benefits and the steps needed to gain prior authorization to ensure understanding of the process for access.
• Assess patient and caregiver needs, tailoring resources and education to ensure understanding, confidence, and support.
• Serve as a trusted point of contact for patients, ensuring questions are answered in a compassionate and compliant manner.

Case Management & Navigation

• Guide patients through the treatment journey, coordinating support services such as travel, lodging, reimbursement, and offering connection to resources.
• Identify potential barriers to treatment and implement proactive strategies to resolve access challenges in collaboration with cross-functional partners.
• Monitor patient milestones and adherence to treatment timelines, ensuring delivery of high-quality and timely support.

Stakeholder Engagement

• Educate internal and external stakeholders on the program to drive awareness.
• Work with Qualified Treatment Centers (QTCs) to monitor patient status and facilitate patient support.
• Partners with QTCs, healthcare providers, and advocacy organizations to enhance patient and caregiver education, increase awareness of program services, and support treatment readiness.
• Represent Patient Services at community-based organization (CBO) events, patient advocacy conferences, and industry meetings.
• Gather insights from QTC visits, CBO interactions, and conference attendance to inform program design, messaging, and outreach strategy.
• Communicate key insights and patient trends back to internal stakeholders to continuously refine engagement approaches and optimize program design.

Program Operations & Continuous Improvement

• Contribute to the design and implementation of patient support initiatives, work instructions, patient-facing resources, and best practices.
• Utilize data, analytics, and patient feedback to identify opportunities for program improvement and drive excellence.

 QUALIFICATIONS:

• BA/BS with a minimum of 10 years of pharmaceutical/biotech patient services experience with demonstrated expertise in access/reimbursement and complex case management. Registered Nurse (RN) and Gene therapy experience is a plus.
• Direct experience working with patients and/or caregivers.
• Strong knowledge of payer systems, reimbursement processes, and patient assistance resources.
• Exceptional communication skills, with the ability to engage patients, caregivers, and healthcare providers with empathy and clarity.
• Deep empathy, resilience, creativity in problem-solving, attention to detail, and action oriented.
• Proficiency in data analysis and application of performance metrics to inform program improvements.
• Knowledge of regulatory and compliance guidelines for industry and ability to evaluate unique scenarios in the context of program SOPs, policies and OIG requirements.

CORE COMPETENCIES:

• Patient-first mindset with deep empathy and cultural sensitivity.
• Resilience and composure in high-stakes, emotionally complex situations.
• Creative problem-solving and resourcefulness when navigating access barriers.
• Action-oriented with a bias toward resolving issues quickly and thoroughly.
• Strong organizational skills with the ability to manage competing priorities across field and office responsibilities.
• Collaborative approach with the ability to build trust across internal teams, QTC staff, and external partners.

SUMMARY

Genetix Biotherapeutics' Market Access, Advocacy + Policy (MAAP) team is dedicated to helping patients access our innovative gene therapies. As a member of the Market Access Advocacy and Policy team (MAAP) you will be working alongside some of the most committed, creative, and experienced individuals in the cell and gene therapy industry to break new ground so that patients can access our FDA-approved gene therapies—patients who often have no therapeutic alternatives to battle progressive, debilitating, and life-shortening diseases. We are passionate about the science behind our gene therapies and the tremendous value we believe these one-time administered, potentially curative therapies bring to patients, their families, the healthcare system, and society overall.

 ABOUT US

As a member of the Patient Services team, you will have the opportunity to provide education, guidance and support to patients who are enrolled in the company’s patient support services program. In this role, you offer personalized assistance to each patient, and their caregivers, throughout the gene therapy treatment journey.

The Associate Director, Patient Navigator serves as a trusted partner to patients, caregivers, and Qualified Treatment Centers (QTCs), while also collaborating cross-functionally to optimize program operations. This role brings expertise, strategic oversight, and deep empathy to drive patient-centered care and operational excellence.

 KEY RESPONSIBILITIES

Patient & Caregiver Education

• Provide high-touch, education, support & resources to patients and caregivers regarding the gene therapy treatment process, including pre-treatment considerations, treatment day logistics, and post-treatment expectations.
• Educate the patient on their gene therapy coverage based on their benefits and the steps needed to gain prior authorization to ensure understanding of the process for access.
• Assess patient and caregiver needs, tailoring resources and education to ensure understanding, confidence, and support.
• Serve as a trusted point of contact for patients, ensuring questions are answered in a compassionate and compliant manner.

Case Management & Navigation

• Guide patients through the treatment journey, coordinating support services such as travel, lodging, reimbursement, and offering connection to resources.
• Identify potential barriers to treatment and implement proactive strategies to resolve access challenges in collaboration with cross-functional partners.
• Monitor patient milestones and adherence to treatment timelines, ensuring delivery of high-quality and timely support.

Stakeholder Engagement

• Educate internal and external stakeholders on the program to drive awareness.
• Work with Qualified Treatment Centers (QTCs) to monitor patient status and facilitate patient support.
• Partners with QTCs, healthcare providers, and advocacy organizations to enhance patient and caregiver education, increase awareness of program services, and support treatment readiness.
• Represent Patient Services at community-based organization (CBO) events, patient advocacy conferences, and industry meetings.
• Gather insights from QTC visits, CBO interactions, and conference attendance to inform program design, messaging, and outreach strategy.
• Communicate key insights and patient trends back to internal stakeholders to continuously refine engagement approaches and optimize program design.

Program Operations & Continuous Improvement

• Contribute to the design and implementation of patient support initiatives, work instructions, patient-facing resources, and best practices.
• Utilize data, analytics, and patient feedback to identify opportunities for program improvement and drive excellence.

 QUALIFICATIONS:

• BA/BS with a minimum of 10 years of pharmaceutical/biotech patient services experience with demonstrated expertise in access/reimbursement and complex case management. Registered Nurse (RN) and Gene therapy experience is a plus.
• Direct experience working with patients and/or caregivers.
• Strong knowledge of payer systems, reimbursement processes, and patient assistance resources.
• Exceptional communication skills, with the ability to engage patients, caregivers, and healthcare providers with empathy and clarity.
• Deep empathy, resilience, creativity in problem-solving, attention to detail, and action oriented.
• Proficiency in data analysis and application of performance metrics to inform program improvements.
• Knowledge of regulatory and compliance guidelines for industry and ability to evaluate unique scenarios in the context of program SOPs, policies and OIG requirements.

CORE COMPETENCIES:

• Patient-first mindset with deep empathy and cultural sensitivity.
• Resilience and composure in high-stakes, emotionally complex situations.
• Creative problem-solving and resourcefulness when navigating access barriers.
• Action-oriented with a bias toward resolving issues quickly and thoroughly.
• Strong organizational skills with the ability to manage competing priorities across field and office responsibilities.
• Collaborative approach with the ability to build trust across internal teams, QTC staff, and external partners.